Anxiety Disorders Association of America

The Anxiety Disorders Association of America (ADAA) is the only national, non-profit organization solely dedicated to informing the public, healthcare professionals and legislators that anxiety disorders are real, serious and treatable. The ADAA promotes the early diagnosis, treatment and cure of anxiety disorders, and is committed to improving the lives of the people who suffer from them.

Anxiety Disorders Association of America

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Aplastic Anemia & MDS International Foundation

The Aplastic Anemia & MDS International Foundation is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

Aplastic Anemia & MDS International Foundation

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Association of Cancer Online Resources

Founded in 1996 and having served 600,000 cancer patients since then, ACOR sends permission-based, community specific messages to 50,000 cancer patients and family members each day. ACOR is an Internet-based, 501 (c) (3) pubic charity that services 159 cancer patient communities online every day. ACOR is dedicated to improving the quality of care provided to cancer patients and the quality of life of patients, survivors and their caregivers. ACOR leverages its wide technological and biomedical resource expertise to be a reliable source of knowledge, support and community in a relentless worldwide campaign to empower those suffering from cancer.

Association of Cancer Online Resources

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Ben's Friends

BensFriends.org, a network of online communities that provide support for people struggling with rare diseases, was founded in 2006 by Ben Munoz after he suffered a serious stroke caused by a rare condition called an AVM. During his ordeal, Munoz realized how online communities could help support those suffering alone. Since then, Ben and his friends have started numerous other communities helping thousands.

Ben's Friends

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California Coalition for PKU & Allied Disorders

CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism. We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California.

California Coalition for PKU & Allied Disorders

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Cancer Knowledge Network

The Cancer Knowledge Network is an interactive social website that provides a peer-reviewed forum for discussing research and issues pertinent to the oncology community.  The Current Oncology senior editorial board periodically selects journal articles to be featured in forum discussions.  Users are encouraged to participate in these online debates, which are moderated by either the study’s author or a senior editor.  

The Cancer Knowledge Network also provides special content for trainees via a dedicated resident’s section, as well as a special patient’s section that focuses on the theme of “life after cancer."  Our goal is to promote reputable modes of treatment and disease management while creating a central vehicle that promotes physician and patient dialogue, improves communication and, in the process, betters long-term outcomes and quality of life of patients who have survived cancer.

Cancer Knowledge Network

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CanPKU

Canadian PKU and Allied Disorders Inc. is a non-profit association of volunteers, first organized in the Spring of 2008 based in Toronto, Ontario.
 
We are dedicated to providing accurate news, information and support to families and professionals dealing with phenylketonuria and similar, rare, inherited metabolic disorders.
 
Our mission is to improve the lives of people with PKU and allied disorders and the lives of their families.
 
By allied disorders, we mean other rare, inherited metabolic disorders also detected by the modern miracle of newborn screening.

CanPKU

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CaringBridge

CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier. CaringBridge is powered by generous donors.

CaringBridge websites offer a personal and private space to communicate and show support, saving time and emotional energy when health matters most. The websites are easy to create and use. Authors add health updates and photos to share their story while visitors leave messages of love, hope and compassion in the guestbook.

CaringBridge

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Celiac Disease Foundation

Celiac Disease Foundation provides support, information and assistance to people affected by Celiac Disease/Dermatitis Herpetiformis (CD/DH). CDF increases awareness among the general public and works closely with health care professionals, pharmaceutical and medical industries. This cooperative effort puts CDF at the forefront of CD/DH care and research, helping us to aid and benefit those affected.

Celiac Disease Foundation

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Chemo 101

Chemo101 is an interactive website dedicated to cancer patients, their caregivers, and the mid level health care practitioners (MLP) that carry out the treating physician orders.  Chemo101 provides cancer stricken patients and their caregivers with educational and practical information concerning the various single chemotherapeutic agents, combination drug treatment regimens, and supportive care products.  The website navigates patients and caregivers through the various medical terminologies, treatment side effects, and the financial implications (insurance rules and regulations) to consider before starting therapy.  Additionally, Chemo101 provides patient support and financial support resources to help with the emotional, physical, and financial burdens that can be caused by the diagnosis and subsequent treatment of cancer.  

Chemo 101

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Chicago Blood Cancer Foundation

Chicago Blood Cancer Foundation is a 501(c)(3) non-profit organization led by volunteers impacted by blood cancer and committed to curing lymphoma, leukemia, and myeloma. 

We act on our mission by funding cutting edge, impactful research at leading institutions; promoting awareness about blood cancer; educating patients, families, and health care providers about blood cancer and treatments; fostering patient access to information and health care; and address issues of concern to patients and families impacted by lymphoma, leukemia, and myeloma.  Although the research we fund is at medical research institutions in the greater Chicagoland area, Chicago Blood Cancer Foundation’s awareness, educational, access to health care, and advocacy activities are national in scope.   

Chicago Blood Cancer Foundation

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CLL Global Research Foundation

CLL Global Research Foundation began as a concept from patients with chronic lymphocytic leukemia (CLL). The idea was to provide a spotlight on CLL and to accelerate CLL research. Therefore, CLL Global is committed to accelerating progress towards the control of CLL and ultimately finding a cure for the disease as quickly as possible. To accomplish this, we promote a novel structure for research. We preferentially fund projects that translate into rapid clinical applications. We pride ourselves in complementing, rather than replacing, other funding mechanisms by accelerating new ideas, which allows researchers the opportunity for increased funding from other resources. 

CLL Global Research Foundation

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Colon Cancer Alliance (CCA)

The CCA is a national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer. In order to increase screening and survivorship rates, the CCA provides education and patient support, furthers research efforts, and conducts advocacy work across the country.

Colon Cancer Alliance (CCA)

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EmpowHER

EmpowHER is a unique online resource dedicated to helping women improve their health and well-being. We provide up-to-date medical information, access to leading medical experts and advocates, and a devoted community of women who ask questions, share stories, and connect with one another in a safe and supportive environment.

EmpowHER

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Get Your Guts in Gear

Get Your Guts in Gear, Inc. is an organization that raises awareness of Crohn's disease and ulcerative colitis through multi-day cycling events that directly benefit the IBD patient community. Our 3-day events provide a unique venue for participants to feel empowered, accomplished, and part of a greater community.

For more information about GYGIG, please contact us at (718) 875-2123 or info@ibdride.org.

Get Your Guts in Gear is an independent, non profit (501c3) organization.

Get Your Guts in Gear

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Health Works Collective

HealthWorksCollective is an editorially independent, moderated community for thought leaders in international healthcare. We sponsor intelligent debate about all aspects of modern medicine, providing a community where healthcare professionals and patients can discuss the latest issues and advances in their field. We host discussions about innovative medical technology and the latest healthcare policy ideas. We cover issues such as remote diagnostics, insurance reform, hospital administration, health care IT, medical education, the empowered patient, and the future of global health. With the help of our bloggers, we are rapidly becoming the leading online destination for thoughtful, intelligent healthcare debates. Join the conversation  and follow us on Twitter!

Health Works Collective

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Inflammatory Breast Cancer Foundation

The Inflammatory Breast Cancer Foundation ( IBCF ), keeping you up to date on breaking news about Inflammatory Breast Cancer plus educating the public and the medical community that there is more than one type of breast cancer.

Inflammatory Breast Cancer Foundation

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Institute for Myeloma & Bone Cancer Research

The mission of the Institute for Myeloma & Bone Cancer Research is to develop new and cutting-edge therapies to improve the quality of life and longevity of patients who suffer from these catastrophic diseases.

Institute for Myeloma & Bone Cancer Research

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International Myeloma Foundation

The International Myeloma Foundation (IMF) is the oldest and largest myeloma organization, reaching more than 135,000 members in 113 countries worldwide.

International Myeloma Foundation

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Lymphoma Foundation of America

Lymphoma Foundation of America (LFA) is the national organization devoted to helping lymphoma patients and families: support services, second opinions, nurse-counseling, referrals, information on new treatments, patients' rights, and alternative treatments. To help find a cure for lymphoma, LFA gives grants and awards to distinguished scientists and researchers.

Lymphoma Foundation of America

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Medezon

Medezon brings providers and patients together in a virtual Medical Marketplace. Patients use Medezon's robust platform to  search for  medical services in their vicinity, view and compare costs of health care services.   Providers can showcase their services online, get access a larger patient pool and also receive payments without complicated billing and claims processing.

Mission statement

Medezon brings the  power of free marketplace online with the broadest network of Medical Services

Medezon

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Multiple Myeloma Opportunities for Research and Education (MMORE)

Our mission—our deep commitment—is to support multiple myeloma research to discover new life-prolonging treatments, improve quality of life for myeloma patients, and ultimately to find a cure.  

MMORE funds multiple myeloma research through our signature fundraising events and by supporting the fundraising efforts of individuals in communities across the country.

Multiple Myeloma Opportunities for Research and Education (MMORE)

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MyHopeSpace.com

MyHopeSpace.com offers cancer patients, survivors, caregivers and their support network an easy way to communicate and share their stories, their struggles, and their accomplishments with other members.

MyHopeSpace.com

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MyLifeLine.org

MyLifeLine.org is a 501(c)(3) nonprofit organization that encourages cancer patients and caregivers to create free, customized websites. Our mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing. We believe a strong support community is critical for cancer patients. Everyday we provide free, personal websites to cancer patients and caregivers to connect with friends and family, because no patient should ever feel alone.

MyLifeLine.org

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National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)

The National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM) is a non-profit organization established in 1982. It currently operates under Section 501(c)(6) of the Internal Revenue code. Its mission is to establish, assess, and promote recognized standards of competence and safety in acupuncture and Oriental medicine for the protection and benefit of the public.

National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)

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National CML Society

We are an organization dedicated to improving the lives of individuals living with CML, diminishing suffering for both patient/survivor and caregiver, and uniting the voice of the CML community in the United States.

We are Fighters, Survivors, Caregivers, and Families, working together in the hopes of one day witnessing a cure! Through our initiatives, we provide opportunities to learn about CML, participate in ground-based support groups, interface with others on this journey, foster research, and celebrate life.

National CML Society

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National Comprehensive Cancer Network (NCCN)

NCCN.com is a website devoted to patients, caregivers, and family, from NCCN. The website features the NCCN Treatment Summaries for Patients With Cancer™, the only patient-oriented cancer treatment discussions based on the NCCN Clinical Practice Guidelines in Oncology™, a resource for clinicians worldwide. Sections on living with cancer, life beyond cancer, and paying for treatment provide practical tips, resources, and support for patients coping with cancer in their daily lives. In addition, articles outlining cancer basics and cancer prevention, as well as articles for friends and family, support the goal of educating patients, caregivers, and families about cancer--from a basic understanding of the disease, to treatment options, to life beyond--so they can enjoy longer and better-quality lives.

National Comprehensive Cancer Network (NCCN)

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National Fibromyalgia Association

The National Fibromyalgia Association (previously known as the National Fibromyalgia Awareness Campaign) is a [501(c) 3] nonprofit organization whose mission is:

To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.

National Fibromyalgia Association

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National PKU Alliance

The National PKU Alliance works to improve the lives of individuals with PKU and pursue a cure.  Volunteer leaders created the NPKUA in 2008 to serve a dual mission:  improve the daily lives of those individuals and families affected by PKU and accelerate the timeline for a cure by investing in peer review and targeted research.  The organization is comprised of a coalition of 17 local PKU support groups across the country and focuses its efforts on four signature programs:  advocacy, education, support and research.  The NPKUA has been welcomed by patients, professionals, and industry across the United States and has proven itself to be thoughtfully aggressive in helping families and adults who need it mos

National PKU Alliance

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Northwest Sarcoma Foundation

The Northwest Sarcoma Foundation is a non-profit organization committed to providing education and support to patients and families who are living with this specific cancer. Additionally, we will create and actively participate in the direction of a national alliance with other sarcoma foundations and affiliated groups guiding a coalition among private and public concerns furthering research for a cure of sarcomas. We are devoted and single-minded in our purpose as a change agent in these very important pursuits.

Northwest Sarcoma Foundation

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Pancreatic Cancer Action Network

The Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization is leading the way to increase the survival rate for people diagnosed with this devastating disease through a bold initiative—The Vision of Progress: Double the Pancreatic Cancer Survival Rate by 2020. Together, we can know, fight and end pancreatic cancer by intensifying our efforts to heighten awareness, raise funds for comprehensive private research, and advocate for dedicated federal research to advance early diagnostics, better treatments and increase chances of survival.

Pancreatic Cancer Action Network

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Partners in Personal Oncology

Co-founded by a hematologist-oncologist at the University of Washington and a neurosurgeon at Swedish Hospital, PiPO transcends institutional boundaries to bring best-in-the-world technology and individualized advice to the treatment of cancer patients today, while furthering our understanding of cancer for the benefit of future generations. Members of PiPO’s Board of Directors have established track records in advancing science and technology for the benefit of human health.

Partners in Personal Oncology

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Patients Against Lymphoma

Patients Against Lymphoma was founded in 2002 by patients and caregivers directly affected by lymphomas, a kind of blood cancer that has risen 4% annually between 1970 and 1990. We provide timely access to evidence-based information on lymphoma and its treatments; - and engage the research community - providing patient perspectives on the direction of clinical research and the design of clinical trials.

Patients Against Lymphoma

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PKU Organization of Illinois & Allied Disorders

Our mission is to be a resource for families in Illinois and around the world dealing with Phenylketonuria and Allied Disorders. The PKU Organization of Illinois is a not-for-profit membership organization for the benefit of patients and families.

PKU Organization of Illinois & Allied Disorders

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Power of Pain Foundation

The Power of Pain Foundation (POPF) is a national, non-profit organization dedicated to increasing awareness and education for the public, healthcare professionals and legislators that chronic Neuropathy pain conditions and challenges are real, serious and treatable. The POPF promotes the early diagnosis, proper treatment and awareness for Neuropathy conditions, and is committed to improving the lives of the people who suffer from them.

Power of Pain Foundation

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Priopionic Acidemia Foundation (PAF)

Priopionic Acidemia Foundation (PAF)

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Project PKU

Based in Victoria British Columbia, Project PKU was created by Amanda Cosburn as a resource for the PKU community. The organization offers many interactive ways to meet others, learn about PKU, ask questions and be involved. Project PKU works hard to bring services like support groups on Facebook, including their fan pages, cooking shows, video blogs, and events they attend and host. They are always looking for new ways to bring patients up to date information, the latest research findings and news on breakthrough advances in the PKU. Learn more by visiting www.projectpku.com

Project PKU

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Sarcoma Alliance

Striving to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, guidance, education and support.

Sarcoma Alliance

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Senior Guidebook

The Senior Guidebook to Western Washington is a unique housing resource, reflecting the warmth and care of the communities represented in the magazine. The guide, which is distributed quarterly, can be found any place that seniors and their loved ones are sitting and waiting. The clean, easy to read copy and glossy 4-color photos, lends itself to being a quality table top magazine. In addition to the respected communities highlighted in the publication, it includes articles written by locally and nationally recognized elder service provider authorities.

Senior Guidebook

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