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Resources

You are not alone! There are many organizations that share our mission of supporting you and your family as you face a serious illness. Call or write to them. Attend their meetings. Draw from more than one. Do not suffer in silence. People want to help.

Resource Website Contact Number
Advancing Treatments for Adrenocortical Carcinoma http://www.adrenalcancer.org/ None Available
ALS Association http://www.alsa.org (800) 782-4747
ALS Association, Evergreen Chapter http://webwa.alsa.org/site/PageServer?pagename=WA_homepage (866) STOP ALS
Alzheimer's Association http://www.alz.org (800) 272-3900
American Academy of Asthma Allergy & Immunology http://www.aaaai.org (800) 822-2762
American Academy of Neurology http://www.aan.com (800) 879-1960
American Cancer Society http://www.cancer.org (800) ACS-2345
American Chronic Pain Association http://www.theacpa.org (800) 533-3231
American Diabetes Association http://www.diabetes.org (800) 342 2383
American Heart Association http://www.americanheart.org (800) 242 8721
American Liver Foundation http://www.liverfoundation.org (888) 4HEP-USA
American Lung Association http://www.lungusa.org (800) 548 8252
American Obesity Association http://www.obesity.org (202) 776-7711
American Pain Foundation http://www.painfoundation.org (888) 615-PAIN
American Parkinson Disease Association http://www.apdaparkinson.org (800) 223 2732
American Partnership For Eosinophilic Disorders http://www.apfed.org (713) 498 8216
American Society of Clinical Oncology (ASCO) http://www.asco.org (703) 299 0150
American Stroke Association http://www.strokeassociation.org (888) 4-STROKE
American Tinnitus Association http://www.ata.org (800) 634 8978
American Urological Association http://www.urologyhealth.org (410) 689-3700
Anxiety Disorders Association of America http://www.adaa.org (240) 485 -1001
Appendix Cancer and Peritoneal Surface Malignancy http://www.appendix-cancer.com None Available
Arthritis Foundation http://www.arthritis.org (800) 568 4045
Asthma and Allergy Foundation of America http://www.aafa.org (800) 7-ASTHMA
Blue Cross Blue Shield Association's National Anti-Fraud Department http://www.bcbs.com/antifraud (877) 327 BLUE
Breast Cancer Network of Strength® http://www.networkofstrength.org/ (800) 221 2141
Cancer Lifeline http://www.cancerlifeline.org (800) 255 5505
CancerCare http://www.cancercare.org (800) 813-HOPE
Celiac Disease Foundation http://www.celiac.org (818) 990-2354
chemotherapy.com http://www.chemotherapy.com 800-772-6436
ClinicalTrials.com http://www.clinicaltrials.com (800) 664-5099
ClinicalTrials.gov http://www.clinicaltrials.gov (888) FIND-NLM
Coalition for Pulmonary Fibrosis http://www.coalitionforpf.org/ 888) 222-8541
Colon Cancer Alliance http://www.ccalliance.org (877) 422-2030
Cool Headz Hats http://www.coolheadzhats.com (206) 526-7164
Crohn's Disease Relief http://www.crohnsdiseaserelief.com None Available
DrugWatch.com http://www.drugwatch.com (800) 452-0949
Eating Disorder HOPE http://www.eatingdisorderhope.com/ None Available
Eating Disorders Support http://www.eatingdisorderssupport.com (206) 232-8404
European Association for Palliative Care (EAPC) http://www.eapcnet.org None Available
Foundation for Clinical Research in IBD http://www.myibd.org None Available
Gilda's Club http://www.gildasclub.org (888) GILDA-4-U
Go Red for Women http://www.goredforwomen.org (800) 242-8721
Harborview Medical Center http://www.uwmedicine.org/Facilities/Harborview/ (206) 731-3000
Hearing Loss Association of America http://www.hearingloss.org (301) 657-2248
Inflammatory Breast Cancer Foundation http://www.eraseibc.com/22701.html (866) 944-4223
International Melanoma Foundation http://www.safefromthesun.org (866) 463-6663
International Scleroderma Network http://www.sclero.org (800) 564-7099
Interstitial Cystitis Association http://www.ichelp.org (800) help-ica
Juvenile Diabetes Research Foundation http://www.jdrfnorthwest.org (800) 925-5533
KidsHealth http://www.kidshealth.org None Available
Living Legacy Foundation http://www.livinglegacyregistry.org (877) 275-5269
Lung Cancer Online http://www.lungcanceronline.org None Available
Marsha Rivkin Center for Ovarian Cancer Research http://www.marsharivkin.org (800) 328 1124
Melanoma International Foundation http://melanomaintl.org (866) 463-6663
Multiple Birth: Prenatal Education & Bereavement Support http://www.multiplebirthsfamilies.com None Available
Multiple Births Canada http://www.multiplebirthscanada.org (705) 429-0901
Multiple Myeloma FIGHTERS! http://mmfighters.home.comcast.net/ (425) 432 2928
National Association for Proton Therapy http://www.proton-therapy.org (301) 587-6100
National Bone Marrow Transplant Link http://www.nbmtlink.org (800) 546-5268
National Cancer Institute http://www.cancer.gov (800) 422 6237
National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM) http://www.nccaom.org (703) 548-9004
National Eating Disorders Association http://www.nationaleatingdisorders.org (800) 931-2237
National Fibromyalgia Association http://www.fmaware.org (714) 921-0150
National Foundation for Infectious Diseases http://www.nfid.org (301) 656-0003
National Headache Foundation http://www.headaches.org (888) NHF-5552
National Osteoporosis Foundation http://www.nof.org (202) 223 2226
National Ovarian Cancer Coalition http://www.ovarian.org (888) OVARIAN
National PKU Alliance http://www.npkua.org None Available
National Psoriasis Foundation http://www.psoriasis.org (800) 723-9166
National Stroke Association http://www.stroke.org (800) STROKES
Ovarian Cancer National Alliance http://www.ovariancancer.org (202) 331-1332
Parkinson's Genetic Research Group http://depts.washington.edu/pgrgroup/ (206) 277-4594
People Living With Cancer http://www.plwc.org (703) 797-1914
PKU Organization of Illinois http://www.pkuil.org (630) 415-2219
Prostate Cancer Petition http://www.prostatecancerpetition.org None Available
RESOLVE: The National Infertility Association http://www.resolve.org (888) 623 0744
Robert H. Lurie Comprehensive Cancer Center of Northwestern University http://www.cancer.northwestern.edu (866) 587-4322
Seattle Facial Plastic Surgery http://www.uwfacialplastic.com (206) 598-0500
Senior Guidebook http://www.seniorguidebook.com (360) 588-9181
Sidran Institute Traumatic Stress Education and Advocacy http://www.sidran.org (888) 825-8249
Sisters Network Inc. http://www.sistersnetworkinc.org (866) 781-1808
Spinal Cord Injury Awareness Center http://www.brainandspinalcord.org/ (800) 800-0640
Spinal Cord Injury Information Pages http://www.sci-info-pages.com None Available
Stress, Anxiety, and Depression Resource Center http://www.stress-anxiety-depression.org None Available
Strike Out Cancer http://www.strikeoutcancer.org (617) 308-4468
Swedish Medical Center http://www.swedish.org (800) 793-3474
The American Academy of Dermatology http://www.aad.org (888) 462-DERM
The Crohn's and Colitis Foundation of America http://www.ccfa.org (800) 932-2423
The Epilepsy Foundation http://www.epilepsyfoundation.org (800) 332-1000
The International Premature Ovarian Failure Association http://www.pofsupport.org (703) 913-4787
The Lance Armstrong Foundation http://www.livestrong.org (866) 235 7205
The Leukemia & Lymphoma Society http://www.leukemia-lymphoma.org (800) 955 4572
The Lupus Foundation of America http://www.lupus.org (800) 558-0121
The National Pain Foundation http://www.nationalpainfoundation.org (303) 783-8899
The National Sleep Foundation http://www.sleepfoundation.org (202) 347-3471
The National Spinal Cord Injury Association http://www.spinalcord.org (800) 962-9629
The North American Menopause Society http://www.menopause.org (440) 442-7550
The Spinal Cord Injury Zone http://www.thescizone.com None Available
The Susan G. Komen Breast Cancer Foundation http://www.komen.org (800) IM AWARE
The Susan G. Komen Breast Cancer Foundation: Puget Sound Affiliate http://www.komenseattle.org (800) IM AWARE
The Wellness Community http://www.thewellnesscommunity.org (888) 793 WELL
The Women's Sexual Health Foundation http://www.twshf.org info@twshf.org
University of Washington Medical Center http://uwmedicine.washington.edu/Patient-Care/Locations/uwmc/Pages/default.aspx (206) 598-3300
Us TOO International http://www.ustoo.com (800) 329-1165
Vascular Disease Foundation http://www.vdf.org (888) VDF-4INFO
Vasculitis Foundation http://www.VasculitisFoundation.org (800) 277-9474
Washington Comprehensive Cancer Control Partnership http://www.doh.wa.gov/CCC/wcccpartnership.htm (360) 236 3784
Zero – The Project to End Prostate Cancer http://www.zerocancer.org (888) 245-9455