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Eosinophilic Gastrointestinal Disorders (EGIDs) are rare conditions characterized by having above-normal amounts of a type of white blood cell in the digestive system called eosinophils. Young children suffering from EGIDs are often unable to accurately describe their symptoms, leaving parents confused about how to address the problem. While significant progress has been made, scientists are still far from pinpointing various causes of these conditions. Two highly regarded experts, known for their knowledge surrounding these conditions are Dr. Glenn Furuta and Dr. Dan Atkins. Dr. Furuta serves as director of the Gastrointestinal Eosinophil Diseases Program, at The Children’s Hospital of Colorado. Dr. Atkins is co-director of the Gastrointestinal Eosinophil Diseases Program at the Children’s Hospital of Colorado and Medical Director of the Pediatric Day Program at National Jewish Medical and Research Center.
In this Patient Power program, you’ll hear Dr. Furuta and Dr. Atkins discuss the difficulties of diagnosing EGIDs. They touch on the latest in patch testing for allergies, as well as the current research into treatment options that may be used in the near future. Both Dr. Furuta and Dr. Atkins answer questions many parents feel are unanswered. How hopeful can we be that a cure will be found in the next five years? What promising treatments are being investigated? Can my child outgrow this disorder? One parent, Beth Mays, who also joins this program, faced many of these same questions and made it her mission to make sure other parents were well-informed.
Beth is Founder and President of the American Partnership for Eosinophilic Disorders
(APFED). As a parent with a child suffering from Eosinophilic Gastroenteritis (EGE), Beth made it her goal to bring awareness to these disorders. Beth shares her story of being frustrated about not knowing what was wrong with her, then 2-year-old, son Charlie, who vomited continuously and had constant stomach aches. After taking Charlie to several different doctors and specialists around the country, Beth was finally given a name to a mysterious illness that she had never heard of. Listen to Beth’s story of frustration, determination and relief in finally getting a diagnosis that, in the end, allowed her to do what was best for her child.
This program introduces you to two world experts and an inspiring parent, all dedicated to making sure you have the right tools for making the best decisions for your family. Learn more about EGIDs, including the severities of these illnesses, dietary restrictions and the role asthma and allergies play.
Guests:
Glenn Furuta M.D., Associate Professor of Pediatrics, Children's Hospital of Colorado
Dan Atkins, M.D., Assistant Professor, Department of Pediatrics, National Jewish Medical and Research Center
Elizabeth Mays, Founder and Former President of APFED, American Partnership for Eosinophilic Disorders
