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    <title>Patient Power - Medical Information and Resources - Topic: Psoriasis</title>
    <link>http://www.patientpower.info</link>
    <language>en-us</language>
    <copyright>2005 - 2013 Patient Power, LLC</copyright>
    <itunes:subtitle>Patient Power, radio interviews with Medical Experts hosted by Andrew Schorr, America's most empowering patient</itunes:subtitle>
    <itunes:author>Patientpower.info, Andrew Schorr</itunes:author>
    <itunes:summary>Patient Power, founded by Andrew Schorr, is dedicated to helping you and your loved ones connect with leading medical experts. Gain the knowledge needed to make smart choices about your health through our extensive library of programs</itunes:summary>
    <description>Patient Power is a service of Patient Power, LLC, based in Seattle and founded by two health communications pioneers, Andrew and Esther Schorr. They previously founded HealthTalk, a leader in support for people with chronic illnesses and cancer. Patient Power is devoted to helping you and your family through knowledge, to get the best medicine and return to good health. Andrew lived that. In 1996 through a routine blood test he was diagnosed with a leukemia. By reaching out to other patients and connecting with doctors who specialize in his illness he participated in a clinical trial, received "tomorrow's medicine today" and now, 9 years after diagnosis, remains in deep remission and takes no medicines. While Andrew's success won't be everyone's story, he is committed to helping each person he touches approach their illness in a way that gives them the best chance of good health: getting smart about their diagnosis, seeking out the best healthcare providers, getting second and even third opinions on what approach to take, and drawing on others for support. Patient Power is built on Andrew's two weekly radio programs, one nationally syndicated and one in Seattle. They can be heard live on the Web and past programs can be found on the Program Replay Library page. Be sure to listen and check out Andrew's Blog to comment or ask questions. He is not a doctor but can help you follow the Patient Power principles to be in better control of your own health and healthcare. Financial support for this effort comes from Andrew and Esther's own funds and sponsors who we appreciate but have no editorial control. Patient Power is not selling anything and has no agenda other than to help you feel better and be as healthy as you can be. The opinions expressed on this site and in the radio programs are Andrew's, his guests, or from callers like you. They do not necessarily reflect the opinions of our sponsors nor any outside organization. Please consult your own doctor for medical advice that is most appropriate for you.</description>
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        <itunes:name>Patient Power - Medical Information and Resources</itunes:name>
        <itunes:email>questions@patientpower.info</itunes:email>
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    <itunes:image href="http://www.patientpower.info/images/patientpower.jpg" />
    <itunes:category text="Health">
        <itunes:category text="Self-Help" />
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    <itunes:explicit>no</itunes:explicit>
	
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        <title>Extreme Inflammatory Skin Conditions: Understanding Erythrodermic Psoriasis</title>
        <itunes:author>Patient Power - Medical Information and Resources. Andrew Schorr. Patientpower.info</itunes:author>
        <itunes:subtitle>Extreme Inflammatory Skin Conditions: Understanding Erythrodermic Psoriasis</itunes:subtitle>
        <itunes:summary>Extreme Inflammatory Skin Conditions: Understanding Erythrodermic Psoriasis</itunes:summary>
        <description><![CDATA[<p>Erythrodermic Psoriasis (EP) is a rare but serious skin condition causing the skin surface to shed severely. On this episode of Patient Power, renowned expert Dr. Abby S. Van Voorhees and two EP patients join the program to focus on extreme skin inflammatory conditions and what&rsquo;s being done to help patients manage the symptoms. Dr. Van Voorhees is Assistant Professor and Director of the Psoriasis and <a class="normallink" href="http://www.pennhealth.com/dermatology/hup/phototherapy.html" target="_blank">Phototherapy Treatment Center of the University of Pennsylvania Health System</a>.</p>
<p>
The program begins with patient stories. You first hear from Vina &ndash; she is currently being treated for erythrodermic psoriasis.   She first developed plaque psoriasis as a teen.  Her skin was scaly, and then she began to have symptoms of EP which caused redness, swelling and her body temperature to rise.  Vina has even been hospitalized because of the condition.  Next you&rsquo;ll hear Jeff&rsquo;s story.  Jeff is National Psoriasis Foundation volunteer of the year for 2008.  He speaks about how a new treatment he was trying for plaque psoriasis triggered an erythrodermic flare.  Both patients share their perspective on living with EP and what their treatment journey has been like. </p>
<p>
Dr. Van Voorhees helps us to understand the symptoms, diagnosis, complications, and causes of erythrodermic psoriasis. She provides information on the treatment options available and how best to manage EP.  Dr. Van Voorhees goes on to answer a variety of listener questions.  Listen now to learn more about this very serious condition. </p>]]></description>
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        <link>http://cdn.patientpower.info/p2audio/dailydose/HR020309.mp3</link>
        <pubDate>Tue, 3 Feb 2009 12:00 PDT</pubDate>
        <itunes:duration>60:00</itunes:duration>
        <itunes:explicit>no</itunes:explicit>
        <itunes:keywords>Health, Radio, Patient, Medical, Patient, Power, radio, show, replays, podcasts, listen, now, medical, specialties, medical, experts, medical, help, archived, radio, programs, Acupuncture</itunes:keywords>
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        <title>Psoriatic Arthritis: Early warning signs, diagnosis and treatment</title>
        <itunes:author>Patient Power - Medical Information and Resources. Andrew Schorr. Patientpower.info</itunes:author>
        <itunes:subtitle>Psoriatic Arthritis: Early warning signs, diagnosis and treatment</itunes:subtitle>
        <itunes:summary>Psoriatic Arthritis: Early warning signs, diagnosis and treatment</itunes:summary>
        <description><![CDATA[<p>Psoriatic arthritis is a life-altering condition that can potentially leave patients debilitated. Early diagnosis and treatment are key factors in controlling the disease. What are the symptoms and treatments? On this webcast hear from two renowned experts: Dr. Christopher Ritchlin, Director of the Clinical Immunology Research Center at <a class="normallink" href="http://www.urmc.rochester.edu/smd" target="_blank">University of Rochester School of Medicine</a>, and Dr. Neil Korman, clinical director of the Murdough Family Center for Psoriasis at <a class="normallink" href="http://www.cwru.edu" target="_blank">Case Western Reserve University</a>. You&rsquo;ll also hear from two patients living with this condition. </p>
<p>
Jarrod, a middle school teacher, shares his story of growing up with psoriasis and the long journey he&rsquo;s had with finding the right treatment.  He talks about kids calling him &ldquo;Spot&rdquo; and later developing pain in his joints, which turned out to be psoriatic arthritis.  Brenda, a nanny in California, also shares her story.  She developed psoriasis at the age of 13, and psoriatic arthritis at 21.  At one point she was about 98-percent covered and couldn&rsquo;t walk, and suffered from depression. </p>
<p>
The latest research has shown that psoriasis and psoriatic arthritis are related, and certain biologic medications can treat both problems in some individuals.  Both medical experts discuss the latest in their area of research and what it means for psoriasis patients.  Dr. Ritchlin explains different symptoms one can expect from psoriatic arthritis, and how the condition differs from other inflammatory joint diseases.  Dr. Korman describes treatment options including topicals, ultraviolet light, and oral medication, which can often relieve both the skin problems of psoriasis and joint problems that arise from psoriatic arthritis.  </p>
<p>
Psoriasis is more than just a skin condition, and it can cause other serious problems if left untreated.  Listen to this webcast to learn more about psoriasis and psoriatic arthritis from both a dermatologist and a rheumatologist.  Find out how to locate experts that meet your needs, and hear inspiring stories from patients.  This program is a well-rounded discussion that&rsquo;s not to be missed.  </p>]]></description>
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        <link>http://cdn.patientpower.info/p2audio/dailydose/HR120408.mp3</link>
        <pubDate>Thu, 4 Dec 2008 12:00 PDT</pubDate>
        <itunes:duration>60:00</itunes:duration>
        <itunes:explicit>no</itunes:explicit>
        <itunes:keywords>Health, Radio, Patient, Medical, Patient, Power, radio, show, replays, podcasts, listen, now, medical, specialties, medical, experts, medical, help, archived, radio, programs, Acupuncture</itunes:keywords>
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    <item>
        <title>Psoriasis and Fibromyalgia: Patients Winning the Battle</title>
        <itunes:author>Patient Power - Medical Information and Resources. Andrew Schorr. Patientpower.info</itunes:author>
        <itunes:subtitle>Psoriasis and Fibromyalgia: Patients Winning the Battle</itunes:subtitle>
        <itunes:summary>Psoriasis and Fibromyalgia: Patients Winning the Battle</itunes:summary>
        <description><![CDATA[<p>Andrew Schorr, a leukemia survivor, has been a pioneer in the movement for each of us to become a smarter patient who retains control over their healthcare rather than blindly ceding it to doctors and nurses. In March, 2007 he launched a daily onehour radio talk show to feature inspiring patients like him and trusted medical experts. In the premiere edition Andrew was joined by other patients who have inspired him ? people dealing with serious chronic conditions.</p><p>Tena Brown, from Texas, was diagnosed with psoriasis, an auto-immune condition at age 13. She suffered for many years. Fortunately, new biologic therapies have helped control her condition. But the journey has been a long and difficult one, and it required her to speak up boldly for herself. </p><p><em>?I decided to become a powerful patient, and thank God that I did, because it enabled me to take my health into my own hands and realize that, hey, like you said, this is my body; this is my treatment; these are my dreams. I was not going to be resigned to a life of misery; that I was going to take my disease, find a way to find the best treatments and the best doctors, and find a way to live with it in a powerful, empowering way. So, for me now, 35 years later, I'm on one of the new drugs, one of the new biologic drugs, which has been a godsend, and I found that because I, once again, educated myself. I studied. I found physicians that were really empathetic and compassionate and top leaders in the field that could prescribe and help guide me in the direction I wanted to go.? </em></p><p>Lynne Matallana from the <a href="http://www.fmaware.org" target="_new"" class="normallink">National Fibromyalgia Association</a> had a similar experience when she found herself sudden wracked by the pain and fatigue of fibromyalgia: </p><p><em> ?I had endometriosis, which oftentimes does overlap for people with fibromyalgia, and went in to have a surgery and ended up waking up during the middle of the surgery, and it was like a light bulb had been turned on, and no matter how hard I tried to flip that switch to turn it off, it wouldn't, and I just felt like every part of my body was on fire; that maybe acid was running through my veins, and I ached from head to toe, and it didn't go away. I thought, you know, it would take time to recuperate from the surgery, but days turned into weeks. Weeks turned into months, and as time went on, the illness became worse and worse.: </em></p><p>She stayed I bed for months but finally connected with the right doctors and began to find some relief. She also found that many others had struggled in the same way: </p><p><em>?We were people who were struggling going from doctor to doctor and were basically told that there was nothing wrong with them, that this was just all psychological and in their head, and we all knew that that wasn't the case. We knew that there was something physiologically going on within our bodies. And so, after seeing 37 doctors and finally getting my diagnosis of fibromyalgia, I was fortunate enough to start looking at the internet and sending out information, and before I knew it, I had other people who wanted to join my effort.?</em> </p><p> Lynne has become an inspiration to many as she founded the <a href="http://www.fmaware.org" target="_new"" class="normallink">National Fibromyalgia Association</a>, a model for ?smarter patients? and how they can help improve care for all.</p>]]></description>
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        <link>http://cdn.patientpower.info/p2audio/dailydose/HR030507.mp3</link>
        <pubDate>Mon, 5 Mar 2007 12:00 PDT</pubDate>
        <itunes:duration>60:00</itunes:duration>
        <itunes:explicit>no</itunes:explicit>
        <itunes:keywords>Health, Radio, Patient, Medical, Patient, Power, radio, show, replays, podcasts, listen, now, medical, specialties, medical, experts, medical, help, archived, radio, programs, Acupuncture</itunes:keywords>
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        <title>Breakthroughs in psoriasis and making sure you get the latest care</title>
        <itunes:author>Patient Power - Medical Information and Resources. Andrew Schorr. Patientpower.info</itunes:author>
        <itunes:subtitle>Breakthroughs in psoriasis and making sure you get the latest care</itunes:subtitle>
        <itunes:summary>Breakthroughs in psoriasis and making sure you get the latest care</itunes:summary>
        <description><![CDATA[]]></description>
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        <link>http://cdn.patientpower.info/p2audio/radio/040305.mp3</link>
        <pubDate>Sun, 3 Apr 2005 12:00 PDT</pubDate>
        <itunes:duration>60:00</itunes:duration>
        <itunes:explicit>no</itunes:explicit>
        <itunes:keywords>Health, Radio, Patient, Medical, Patient, Power, radio, show, replays, podcasts, listen, now, medical, specialties, medical, experts, medical, help, archived, radio, programs, Acupuncture</itunes:keywords>
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