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Latest Expert
Advice for
Living Well
with Myeloma
Recently, myeloma patients and caregivers came together at a town hall in Columbus, Ohio where they learned more about the latest myeloma news, treatment planning, strategies for managing side effects and more about how to live well with myeloma.
Below are video segments along with some interviews from the town hall.
Interviews
Matthew and his wife Kate discuss how they keep a positive attitude by making sure myeloma doesn't run their lives and how they made the decision to spend the rest of their lives together regardless of cancer.
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Lois Hoffman shares her story of how partnering with a myeloma specialist helped her overcome being afraid of the disease, knowing that it is now being properly managed.
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Dr. Craig Hofmeister discusses how while the first 6 months after being diagnosed with myeloma can be challenging, it is important to keep the long term treatment perspective in mind.
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Hear from Sarah Kaufmann-Fink about being diagnosed with Multiple Myeloma at 22 years old.
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Dr. Craig Hofmeister discusses how patients and their physicians can best communicate, leading to better overall care.
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Dr. Sagar Lonial explains how he approaches the complicated question of determining the right sequence or combination of therapies with his patients.
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Cheryl Boyce shares her story of living well with myeloma over the last 13 years and how she does not let the disease control her life.
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Segments from the Program
Speaking Up About How You Really Are Feeling
Laura Beemiller, oncology social worker, and Dr. Sagar Lonial discuss the importance of talking with your medical team about how you are feeling so that, if necessary, medication dosing adjustments can be made to help reduce challenging side effects.
Laura Beemiller, oncology social worker, and Dr. Sagar Lonial discuss the importance of talking with your medical team about how you are feeling so that, if necessary, medication dosing adjustments can be made to help reduce challenging side effects.
By: Patient Power
Communicating with Friends and Family
Cheryl Boyce and Matt Hare, patient advocates, discuss their experiences of being diagnosed with myeloma and the importance of sharing them with others.
Cheryl Boyce and Matt Hare, patient advocates, discuss their experiences of being diagnosed with myeloma and the importance of sharing them with others.
By: Patient Power
Myeloma: Dealing with Depression
For some myeloma patients, options like therapy, supplements, antidepressants and support groups can help provide the extra boost needed to improve their quality of life during a challenging time.
For some myeloma patients, options like therapy, supplements, antidepressants and support groups can help provide the extra boost needed to improve their quality of life during a challenging time.
By: Patient Power
Defining Risk in Myeloma
Dr. Sagar Lonial explains there are a number of factors that help determine whether someone has high vs. standard risk myeloma including FISH tests and examining the entire patient picture-- past and current treatments, what happened to the myeloma cells over time and how long treatments last.
Dr. Sagar Lonial explains there are a number of factors that help determine whether someone has high vs. standard risk myeloma including FISH tests and examining the entire patient picture-- past and current treatments, what happened to the myeloma cells over time and how long treatments last.
By: Patient Power
Cost of Being in a Clinical Trial
Dr. Sagar Lonial, myeloma expert, gives an overview of how a clinical trial is billed and the importance of looking at standard vs. non-standard treatment of care.
Dr. Sagar Lonial, myeloma expert, gives an overview of how a clinical trial is billed and the importance of looking at standard vs. non-standard treatment of care.
By: Patient Power
Is a Cure for Myeloma on the Horizon?
Drs. Craig Hofmeister and Sagar Lonial explain their optimism for a myeloma cure in the near future and the importance of understanding the genetic components that separate the different myeloma subsets.
Drs. Craig Hofmeister and Sagar Lonial explain their optimism for a myeloma cure in the near future and the importance of understanding the genetic components that separate the different myeloma subsets.
By: Patient Power
Allogeneic Transplant for Multiple Myeloma
Dr. Craig Hofmeister describes what allogeneic transplant is, the challenges and the hope to improve this medical procedure moving forward.
Dr. Craig Hofmeister describes what allogeneic transplant is, the challenges and the hope to improve this medical procedure moving forward.
By: Patient Power
Risk of Another Cancer After Myeloma
Dr. Craig Hofmeister addresses the important question of whether being on powerful drugs for an extended period of time may increase a patient's risk of developing another cancer.
Dr. Craig Hofmeister addresses the important question of whether being on powerful drugs for an extended period of time may increase a patient's risk of developing another cancer.
By: Patient Power
Knowing When to Change Treatments in Myeloma
Dr. Sagar Lonial explains the two main reasons for changing treatments in myeloma are toxicity and disease progression.
Dr. Sagar Lonial explains the two main reasons for changing treatments in myeloma are toxicity and disease progression.
By: Patient Power
Long-Term Treatment Planning for Multiple Myeloma
Drs. Sagar Lonial and Craig Hofmeister discuss the "road map of care" approach and how treatment response expectations have advanced for Multiple Myeloma.
Drs. Sagar Lonial and Craig Hofmeister discuss the "road map of care" approach and how treatment response expectations have advanced for Multiple Myeloma.
By: Patient Power
Staging in Myeloma
Dr. Sagar Lonial explains how myeloma staging is different than solid tumors like breast cancer.
Dr. Sagar Lonial explains how myeloma staging is different than solid tumors like breast cancer.
By: Patient Power
Maintenance Therapy: What is it? When is it Needed?
Dr. Sagar Lonial discusses the latest thinking about about maintenance therapy following transplant.
Dr. Sagar Lonial discusses the latest thinking about about maintenance therapy following transplant.
By: Patient Power
Transplant or Targeted Therapy: What's the Mainstay for Treatment in Multiple Myeloma?
Drs. Craig Hofmeister and Sagar Lonial discuss the "package deal" approach of when to use various treatments such as transplants, non-transplants and combination therapies.
Drs. Craig Hofmeister and Sagar Lonial discuss the "package deal" approach of when to use various treatments such as transplants, non-transplants and combination therapies.
By: Patient Power
Myeloma Treatment Classes
Drs. Sagar Lonial and Craig Hofmeister provide a brief overview on the different myeloma treatment classes. The treatment classes include corticosteroids, proteasome inhibitors, IMids, and chemotherapy.
Drs. Sagar Lonial and Craig Hofmeister provide a brief overview on the different myeloma treatment classes. The treatment classes include corticosteroids, proteasome inhibitors, IMids, and chemotherapy.
By: Patient Power
What Happens in the Blood When You Have Myeloma?
When someone has multiple myeloma, it means something has gone wrong in their "blood factory." Dr. Sagar Lonial explains.
When someone has multiple myeloma, it means something has gone wrong in their "blood factory." Dr. Sagar Lonial explains.
By: Patient Power
Importance of Connecting with a Myeloma Specialist
Hear from myeloma expert, Dr. Craig Hofmeister, and patient advocates, Matthew Hare and Lois Hoffman, about the importance of connecting with a specialist who can help navigate the 'alphabet soup' of therapies, help educate you on your condition and discuss what your future holds.
Hear from myeloma expert, Dr. Craig Hofmeister, and patient advocates, Matthew Hare and Lois Hoffman, about the importance of connecting with a specialist who can help navigate the 'alphabet soup' of therapies, help educate you on your condition and discuss what your future holds.
By: Patient Power
Factors to Consider When Making Myeloma Treatment Decisions
Dr. Craig Hofmeister discusses the important factors one should consider when making treatment decisions.
Dr. Craig Hofmeister discusses the important factors one should consider when making treatment decisions.
By: Patient Power
MMORE: Multiple Myeloma Opportunities for Research and Education is a nonprofit organization dedicated to finding a cure for multiple myeloma. Based in Columbus, Ohio, and with hubs in Minneapolis, MN and Seattle, WA, MMORE is building a presence throughout the United States. Together this community is conducting grassroots fundraising to support new research ideas focused on finding a cure.
Join us. Wherever you are, however you can, Get MMORE Involved. Contact getmmoreinvolved@mmore.org to learn how you can host your own fundraiser, join our MoveMMORE Across America Run/Walk in June, and become involved in other ways to support MMORE’s efforts. Together we’ll find a cure.
Made possible through educational grants from
Millennium: The Takeda Oncology Company,
Onyx Pharmaceuticals
Celgene Corporation
and Sanofi Oncology
Millennium: The Takeda Oncology Company,
Onyx Pharmaceuticals
Celgene Corporation
and Sanofi Oncology
Featured Partner
National Comprehensive Cancer Network (NCCN)
National Comprehensive Cancer Network (NCCN)
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