7/6/2009

Juvenile Huntington’s Disease

Patient Power® is recognized for its dedication to educating patients about illnesses that are not covered by mainstream media. One such illness is Huntington's Disease (HD), also commonly referred to as Huntington's chorea. This webcast is one of three programs focusing on this condition in children, adults and research efforts such as clinical trials and experimental therapies under investigation.

Juvenile Huntington’s disease is rare, but certainly not unheard of. It can affect children any time between infancy and young adulthood. Children with HD have a range of needs that require special attention by various providers. Often times, this includes a neurologist, psychiatrist, physical therapist, nutritionists and various social services. These issues and more are discussed with two leading experts, Dr. Martha Nance, director of the Huntington's Disease Clinic at Hennepin County Medical Center and Dr. Sandra Kostyk, associate professor of Neurology at Ohio State University Medical Center. Both experts join Andrew for a discussion about the latest in HD numbers affecting children, genetic testing, life expectancy and the importance of a team approach for this condition.

This disease is indeed a difficult diagnosis for both parent and child, but arming oneself with resources is key, especially with groups like the Huntington's Disease Society of America. If you have been searching for in-depth information about juvenile HD, you have come to the right place. This program offers a wealth of information that may not be found anywhere else. Listen to this webcast to hear why symptoms of juvenile HD vary from that of adults, where research is headed and find out how you and your family can get the help you deserve.

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Questions about the program? Email questions@patientpower.info