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Kevin Alexander Kevin Alexander
Living with PKU

Kevin Alexander of Shreveport, Louisiana, is Patient Power's PKU reporter and a successful television news videographer living with PKU. Kevin was touched by numerous stories of patients off diet and sought to learn how he could make a difference in the lives of others living with this genetic condition. Now 31, Kevin continues to stick to diet, take his formula and medication, and interact with others who have PKU. He writes a weekly blog that appears both on the Metabolic Disease Foundation website and the RARE Project website. He is also a member of the International Society of Neonatal Screening and has been invited to serve on the National Advisory Committee for Genetic Alliance.

Programs:
09/07/2012 - Research Update: PKU and the Brain Program Details >>
08/19/2012 - PKU Effects on Cognitive Function Program Details >>
08/16/2012 - PKU Research Advances Program Details >>
08/15/2012 - First Patient Diagnosed with PKU in Australia Shares Her Story Program Details >>
08/14/2012 - Raising Children with PKU Program Details >>
08/03/2012 - PKU Convention Update: Newborn Screening on the Rise Program Details >>
Videos:
Powerful PKU Mom Shares Difficult Diagnosis Story Watch Now >>
Take Action on World Rare Disease Day Watch Now >>
Working Globally: Raising Awareness about Newborn Screening and PKU in Brazil Watch Now >>
50 Year Celebration of Newborn Screening Affirms Life-Saving Efforts Watch Now >>
Dec. 3: Take Action on National PKU Awareness Day! Watch Now >>
New Care Guidelines a Key Focus at the 2012 European PKU Conference Watch Now >>
PKU Research Advances Watch Now >>
Understanding the Difference Between PKU and ADHD Watch Now >>
PKU Effects on Cognitive Function Watch Now >>
Raising Children with PKU Watch Now >>
Research Update: PKU and the Brain Watch Now >>
PKU Convention Update: Newborn Screening on the Rise Watch Now >>
Kevin Alexander: My PKU Journey Watch Now >>
How I Manage PKU and ADHD Watch Now >>

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