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Jane Keane
Director of Patient Services
National Organization for Rare Disorders
Ms. Jane Keane has been with the National Organization for Rare Disorders (NORD) since 1997. She began her career as a Patient Representative, assisting individuals to access needed medications using financial means testing. Several years later, she was assigned to programs working with AIDS and Multiple Sclerosis (MS) patients. Soon after that, came the Medicare Demonstration Project. NORD as a 501(c)(3) charity was asked to assist individuals with the donut hole payment required by this new government program. Jane was asked to co-assist with that team. Currently, Jane is the Director of NORD's Patient Assistance Programs, responsible for overseeing the day-to-day operations of the 41 various patient assistance programs, as well as participating in patient meetings.
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